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Delivering Next Generation Care

For Families and Patients

Resources and Educational Materials

Patient/Family Education Materials by Category

Home Care Procedures

After a Urinary CatheterHmong, Spanish Caring for a child after a urinary catheter is taken out. 

Antegrade Continence Enema (ACE): Irrigation:  How to give enemas to a child with a surgically created "ACE" tube. See also: Antegrade continence enema (ACE): Surgery

Arm and Hand Strengthening:   

Blood Glucose Testing:  How to take a sample of blood from a fingertip and test it for glucose (sugar). See also: Hypoglycemia in Babies, Injections (subcutaneous)

Blood Pressure Measurement:  How to measure your child's blood pressure, using either an automatic or a manual cuff. 

Calming Activities: Home Program:  Describes what you need to know about medicines to give them safely; includes a reminder chart. 

Catheterizing a Boy (Intermittent)Spanish How to help your child drain the bladder using a tube. 

Catheterizing a Girl (Intermittent)Spanish How to help your child drain the bladder using a tube. 

Central Venous Catheter: Care at HomeSpanish A tube inserted into a large vein to give medicines or fluids and take blood samples. See also: Intravenous Therapy

Chemotherapy (Outpatient): Cyclophosphamide:  What to watch for and what to do at home after outpatient chemotherapy. See also: Cyclophosphamide (Cytoxan)

Chemotherapy (Outpatient): Cyclophosphamide and Etoposide:  What to watch for and what to do at home after outpatient chemotherapy. See also: Cyclophosphamide (Cytoxan), Etoposide (VePesid)

Chemotherapy (Outpatient): Ifosfamide and Etoposide:  What to watch for and what to do at home after outpatient chemotherapy. See also: Ifosfamide (Ifex), Etoposide (VePesid)

Chemotherapy (Outpatient): Methotrexate (1 to 5 grams/m2):  What to watch for and what to do at home after outpatient chemotherapy. See also: Methotrexate (for Chemotherapy)

Chemotherapy at Home (IV push)Spanish Step by step instructions for giving chemotherapy at home by the IV push method. See also: Central Venous Catheter: Care at Home

Dental Care with a Bleeding Disorder:  What to do when dental work is planned for a child with a bleeding disorder. See also: Aminocaproic Acid (Amicar), Desmopressin (DDAVP) for Bleeding Disorders, Factor Concentrate at Home, Mouth Bleeding with a Bleeding Disorder, Nosebleed Treatment with a Bleeding Disorder

Factor Concentrate at HomeSpanish Step-by-step instructions for giving factor by IV at home. See also: Aminocaproic Acid (Amicar), Desmopressin (DDAVP) for Bleeding Disorders, Desmopressin (Stimate), Head Injury with Bleeding Disorders, Tonsillectomy and/or Adenoidectomy (with a Bleeding Disorder), Tranexamic acid

Fall Prevention at Children's:   

Fall Prevention at Home:  Lists medical situations in which falls are more likely at home, and ways to prevent them. See also: Crutches, Oxygen Safety at Home

Fecal Pouch Emptying:  When and how to empty your child's stool pouch. See also: Pouch Change: One Piece, Pouch Change: Two Piece (Using Newborn Pouch and Wafer)

Home Monitoring Program:  Information about the home monitoring program designed for babies with single ventricular physiology. 

Immunizations for Children with Bleeding Disorders:  Information for clinic staff and parents on how to prevent bleeding after immunizations. See also: Helping Children Cope with Medical Procedures

Implanted Port: Care at HomeHmong, Spanish Home care for a child with a venous access device. See also: Anesthetic Cream (EMLA; LMX4), Pain in Children and Adolescents, Intravenous Therapy

InhalersHmong, Somali, Spanish Inhalers must be used correctly to be effective. Step-by-step explanation of how to use an inhaler with a spacer. See also: Asthma, Asthma Medicines, Bronchodilators (Long-acting Inhaled), Bronchodilators (Quick-acting inhaled), Corticosteroids (inhaled), Nebulizer treatments, Peak Flow Meter

Injections (intramuscular):  Step by step instructions for giving an injection into the muscle. 

Injections (subcutaneous)Hmong, Spanish Step by step instructions for giving an injection just under the skin. 

Insuflon (indwelling subcutaneous catheter) at home:  How to give injections through a tube inserted under the skin. 

IV Medicines at Home: Eclipse Homepump:  Step-by-step instructions for using the Eclipse Homepump. 

IV Medicines at Home: Excelsior Syringe Pump:  Step-by-step instructions for using the Excelsior Syringe Pump 

IV Medicines at Home: IV Push MethodHmong, Spanish Step-by-step instructions. See also: IV Medicines: Preparing at Home

IV Medicines: Preparing at HomeHmong, Spanish How to draw up and mix IV medicines: step-by-step instructions. See also: IV Medicines at Home: IV Push Method

Mouth Bleeding with a Bleeding DisorderSpanish How to handle mouth bleeding; when to call for help. See also: Aminocaproic Acid (Amicar), Dental Care with a Bleeding Disorder, Nosebleed Treatment with a Bleeding Disorder

Nasogastric Tube FeedingSpanish How to feed a child using a tube from the nose into the stomach: step-by-step instructions. 

Nebulizer TreatmentsHmong, Somali, Spanish Step-by-step guide to giving a nebulizer treatment and caring for the nebulizer. See also: Anti-Inflammatory Medicines (inhaled), Asthma, Asthma Medicines, Asthma Trigger Control, Bronchiolitis, Bronchodilators (quick-acting inhaled), Inhalers, Peak Flow Meter

Nosebleed Treatment with a Bleeding DisorderSpanish How to stop a nosebleed and when to call for help. See also: Aminocaproic Acid (Amicar), Dental Care with a Bleeding Disorder, Desmopressin (DDAVP) for Bleeding Disorders, Factor Concentrate at Home, Mouth Bleeding with a Bleeding Disorder

Oncology Caregiver Education Tool:  Describes what you need to know about medicines to give them safely; includes a reminder chart. 

Oxygen Safety at HomeSpanish How to use oxygen equipment correctly to prevent fire and injuries. 

Peak Flow MeterHmong, Spanish Step-by-step explanation of how to use a peak flow meter to check how well the lungs are working. See also: Asthma, Asthma Medicines, Asthma Trigger Control, Allergy Medicines, Inhalers, Nebulizer Treatments

Peripheral IV: Care at Home:  Step-by-step instructions for handling a peripheral IV; includes problem-solving chart. See also: Intravenous Therapy

Peripherally Inserted Central Catheter: Care at HomeSpanish Step-by-step instructions for handling a "PICC line"; includes problem-solving chart. See also: Intravenous Therapy

Pouch Change: One Piece:  When and how to change your child's stool pouch. See also: Fecal Pouch Emptying, Pouch Change: Two Piece (using Newborn pouch and wafer)

Pouch Change: Two Piece (Using Newborn Pouch and Wafer):  When and how to change your child's stool pouch with a separate skin barrier. See also: Fecal Pouch Emptying, Pouch Change: One Piece

Pressure Sores: Prevention:  What causes pressure sores, and how to prevent them. 

Sensory Diet:  Describes what you need to know about medicines to give them safely; includes a reminder chart. 

Sleep: Home program:   

Spica Cast:  What to expect; how to prevent problems and ease discomfort for a child in a lower-body cast. 

SuctioningSpanish Removing mucus and fluids from the nose, mouth, or throat: when and how to do it. 

Total Parenteral Nutrition at Home using the CADD Pump:  Step-by-step instructions for feeding your child by TPN infusion. See also: Central Venous Catheter: Care at Home

Urinary Catheter (Indwelling): Care at HomeSpanish Caring for a child with a tube placed into the bladder to drain urine. See also: Urinary Catheter Irrigation, After a Urinary Catheter

Urinary Catheter IrrigationSpanish How to open a urinary catheter that is plugged. See also: Urinary Catheter (indwelling): Care at Home

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